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Our Research team’s publications

As part of our research strategy, we are developing a number of projects whilst contributing to others being led by a range of external partners.

St Luke’s staff have published research articles in peer reviewed journals. A selection are below:

Six years of Project ECHO: Implementation and evaluation of a hospice-led multiprofessional education programme. Joddrell P, Manson J, Kyeremateng S, et al. Health Informatics Journal. October 2024. DOI:10.1177/14604582241290719.

Recognising dying in motor neurone disease: A scoping review. Abbey E, Ali M, Cooper M, Taylor P, Mayland CR. Palliative Medicine. July 28, 2024. DOI:10.1177/02692163241263231

Homecare workers needs and experiences in end of life care: rapid review. Forward C, Bayley Z, Walker L, Krygier J, White C, Mwaba K, Elliott-Button H, Taylor P, Johnson MJ. BMJ Support Palliative Care. 2024 Jun 25. Epub ahead of print. PMID: 38490719. DOI: 10.1136/spcare-2023-004737

Sedation from analgesics: patient preference survey. Burdon J, Fingas S, Parry R, Pitsillides C, Taylor P. BMJ Support Palliat Care. Published Online First: 22 February 2024. DOI: 10.1136/spcare-2023-004759

Supported: Supporting, enabling, and sustaining homecare workers to deliver end-of-life care: A qualitative study protocol. Bayley Z, Bothma J, Bravington A, Forward C, Hussain J, Manthorpe J, Pearson M, Roberts H, Taylor P, Walker L, White C, Wray J, Johnson MJ. PLoS One. 2023 Dec 13;18(12). DOI: 10.1371/journal.pone.0291525

Insights into Advance Care Planning in Africa [German]. Basirika D, Merriman A, Gumoyesige N, Namisango E, Matthews E, Guma S. J Evid Qual Healthc. 2023 Jun 23;180:16-20. DOI: 10.1016/j.zefq.2023.04.012

Palliative Care Teaching in The New Internal Medicine Curriculum: Project Echo - An Innovative Approach to Postgraduate Education. Lee GC, McTague L, Hammond P, Jones C, Taylor P, Kyeremateng S. BMJ Support Palliat Care.  DOI: 10.1136/spcare-2022-004008

Creating virtual communities of practice for ambulance paramedics; a qualitative evaluation of the use of Project ECHO in end of life care. Hodge A, Manson J, McTague L, Kyeremateng S, Taylor P. British Paramedic Journal 2022. Nov. 7(3). 51-58. https://doi.org/10.29045/14784726.2022.12.7.3.51  

Measuring quality of dying, death and end-of-life care for children and young people: a scoping review of available tools. Mayland C, Sunderland K, Cooper M, Taylor P, et al. Palliat Med. 2022 Sep;36(8):1186-1206. DOI: 10.1177/02692163221105599

Emergency department presentations in palliative care patients: a retrospective cohort study. Taylor P, Stone T, Simpson R, Kyeremateng S, Mason S. BMJ Supportive and Palliative Care 2022; 0.1-4. DOI: 10.1136/bmjspcare-2022-003563

Mobile technology and delegated work in specialist community services: the EnComPaSS Integration project. Ariss SMB, Taylor P, Fitzsimmons D, Kyeremateng S, Mawson S. BMJ Supportive and Palliative Care 2021; 0:1-8. https://doi.org/10.1136/bmjspcare-2020-002288 

Experiences of surgical nurses in providing end-of-life care in an acute care setting: a qualitative study. Limbu T, Taylor P. British Journal of Nursing. 2021 Oct 14;30(18):1084-1089. DOI: 10.1017/S1478951513000965

Systematic review of factors influencing decisions to limit treatment in the emergency department. Walzl N, Sammy IA, Taylor PM, et al. Emergency Medicine Journal Published Online First: 03 March 2021. DOI: 10.1136/emermed-2019-209398

Palliative care education in nursing homes: a qualitative evaluation of telementoring. Manson J, Gardiner C, Taylor P, et al. BMJ Supportive & Palliative Care Published Online First: 24 February 2021. DOI: 10.1136/bmjspcare-2020-002727

Non-specialist physiotherapists perceptions of treating people with HIV in the UK: a small scale exploratory study. Strudley H. Journal of the Association of Chartered Physiotherapists in Oncology and Palliative Care. Vol. 5. Spring 2020. pp 3-15.

Evaluating an online tele-mentoring palliative care education programme for domiciliary care workers. Manson J, Ghasemi L, Westerdale E, Taylor P, Kyeremateng S, McTague L. Nursing Older People. 2020. DOI: 10.7748/nop.2020.e1235

What are the Barriers and Facilitators to Palliative Care Education in Nursing and Residential Homes? – A Rapid Review. Manson J, Gardiner C, McTague L. International Journal of Palliative Nursing 2020. DOI: 10.12968/ijpn.2020.26.1.32

The development of oral history with users of palliative care services in the UK. Winslow, M. and Smith, S. Sociological Problems. 2019, 51 (1).pp. 26-37.ISSN 0324-1572 (Bulgarian) 

Clinical decision-making at the end of life: a mixed-methods study. Taylor P, Johnson MJ, Dowding DW. BMJ Supportive & Palliative Care. Published Online First: 18 October 2018. DOI: 10.1136/bmjspcare-2018-001535

Palliative care in the emergency department: A systematic literature qualitative review and thematic synthesis. Cooper E et al. Palliative Medicine. Volume 32, Issue 9. 1443-1454. DOI: 10.1177/0269216318783920

Change in Physiological Variables in the Last Two Weeks of Life: An Observational Study of Hospitalized Adults With Heart Failure. Taylor, Paul et al. Journal of Pain and Symptom Management, Volume 55, Issue 5, 1335 – 1340. DOI: 10.1177/0269216314554967

A pilot randomised controlled trial of a holistic needs assessment questionnaire in a supportive and palliative care service. Ahmed N, Hughes P, Winslow M et al. Journal of Pain and Symptom Management. Volume 50, Issue 5. 587-598. DOI: 10.1016/j.jpainsymman.2015.05.010

Preference for a single or shared room in a UK in-patient hospice: patient, family and staff perspectives. Williams C, Gardiner C. BMJ Supportive & Palliative Care 2015; 5:169-174. DOI: 10.1136/bmjspcare-2013-000514


In addition, St Luke’s has supported other research and presented findings at national and international conferences.  Some examples are below: 

How St Luke’s Hospice is using ECHO to deliver Palliative Care training to medical staff in a Clinical Oncology Department in Egypt. McKenzie Smith M, Ghasemi L. Hospice UK annual conference.

“Matters after death” - the development of a new undergraduate teaching module, to address a key educational need.
Grassby R, Fingas S. Royal College of Physicians Regional Poster Competition.

Recognising Dying in Motor Neurone Disease: A Scoping Review. 
Abbey L, Ali M, Cooper M, Taylor P, Mayland C. (Palliative Care Congress). BMJ Supportive & Palliative Care 2023;13:A27.

Evaluation of the safety and efficacy of famotidine as a continuous subcutaneous infusion. 
Mascarenhas T, Brocklebank J, Pitsillides C, Davies J. 2023 Palliative Care Congress

Establishing a research programme in an independent hospice. 
Taylor P, Kyeremateng S, Lenton J et al.  BMJ Supportive and Palliative Care. 12(3) https://spcare.bmj.com/content/12/Suppl_3/A31.2

How can we measure quality of dying, death, and quality of care at the end-of-life for children and young adults? A scoping literature review.
For presentation at EAPC conference - details to follow.

Transitioning Young People with Life-limiting Conditions from Child-Centred to Adult-Oriented Services: Parents’/ Carers’ Concerns & Priorities.
Soman A, Hartley D, Kyeremateng S, Cutsey L, Camplbell J, Newbegin M, Hulme K. (Ref to be confirmed)

METHADONE PRESCRIBING AND OUTCOMES – A SERVICE EVALUATION TO REVIEW CHANGES IN PRACTICE. 
Pitsillides C, Ali M, Nicholson-Lailey A, Fingas S, Davies J.  BMJ Supportive & Palliative Care 2022;12 (Suppl 2):P76

Enablement During a Pandemic: A narrative review of therapy in an In-Patient hospice setting during the Covid-19 pandemic

P-197 Care home virtual open-access integrated clinic and ECHO support: St Luke’s COVID-19 response.
 Westerdale-Shaw E, Ghasemi L, Manson J, et al. BMJ Supportive & Palliative Care 2021;11:A80.

112 Surveying the users of an open-access support service for people affected by an illness that has no cure.
Battye E, Taylor P. BMJ Supportive & Palliative Care 2020;10:A47-A48.

JP-116 What are hospice staff perceptions of caring for patients with aphasia?
Shelley L, Holt. BMJ Supportive & Palliative Care 2019;9:A52-A53.

Enhancing Community Health Outcomes (Project ECHO): Developing a community of practice for nursing homes in End of Life Care (EOLC). 
Ghasemi L, Browne C, Westerdale E, et al. (RCN research conference 2019)

Improving Access to Palliative Care for Homeless Individuals. Conference poster. 
No reference at present.

Experiences of general nurses while caring for end of life patients in an acute care setting: A qualitative interview study. 
Limbu T, Taylor P. (RCN research conference 2019)

Enhancing community health outcomes (project ECHO): developing a community of practice for paramedics in end of life care (EOLC).
  McTague L, Hodge A, Williams C, et al. 9 BMJ Supportive & Palliative Care 2019; 9:A3-A4.

Improving discharge decisions and their documentation at St Luke’s hospice inpatient centre. 
Atkinson K, Parry R, Fingas S. BMJ Supportive & Palliative Care 2019;9:A48.

Service evaluation of the use of fluids at end of life across two inpatient palliative care units. 
Brocklebank J, Pitsillides C, Liddle O, et al. BMJ Supportive & Palliative Care 2019;9:A25.

Moving towards an enhanced community palliative support service (EnComPaSS): impact of using mobile technology to support delivery of community palliative care. 
Taylor P, Mawson S, Ariss S. BMJ Supportive & Palliative Care 2019;9:A40.

Evaluation of the Patient Acuity and Dependency Tool at St Luke's Hospice

P-31 Preparing for the evaluation of an enhanced community palliative support service (encompass). 
Fitzsimmons D, Ariss S, Mawson S. BMJ Supportive & Palliative Care 2015;5:A11.

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